• Dental Phobia Support

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A hopeless story, and appreciation of this website's materials.

C

Cant_again

Junior member
Joined
Mar 11, 2023
Messages
4
Location
Europe
Hello.

This will not be a success story, not will it indicate any chance of one happening. If that breaks the rules, then I understand and apologize.

First, I would like to express my appreciation to the creator(s) of the website, for actually including materials that can be used to take care of dental matters myself, under "Dental topics" tab.
While 99% of other websites simply say "go to a dentist", if that was so easy (or possible at all) for us, we wouldn't ask for such help.
This is the only website I found that takes this seriously, and provides self-help and guidance materials that improve my ability to take care of my dental issues myself, to the extent possible. This is a set of difficult to find, actual, and extremely useful data, like The Stephan Curve. This may just literally save a few years of my life.
I am continuing to look for methods to protect these teeth, that are still in relatively good shape. Advice and life hacks from non-dentists is also welcome. I'm OK with them being on the expensive side, as long as they're effective. The only requirement is that I am able to do it myself.
Some of my teeth are way beyond saving, though, and I'm fine with that.
I do not drink alcohol, smoke, or use any psychoactive substances, and I never did in my life. Not even once.

For the less pleasant part, a warning: mentions of suicidal intentions - in section "Life without a dentist." Please do not read it, if You're sensitive.

To say I have a dentophobia, would be a severe understatement. I will not allow anyone, especially a dentist, anywhere near my teeth, and that's not up to discussion.

This story is quite lengthy and exhaustive. I will try to break it into semi-independent sections, that can be skipped.

Personal background.
I live in a post-communist country (from the eastern bloc), and I'm over 30 years old now. I can't share more on that. We have dentists working in a public healthcare (think NHS) and in private healthcare, and I'll refer to them as such (public/private). Private healthcare is vastly superior, but it's expensive, especially the dentistry. My parents were poor, so we usually could not afford a private dentist visit. And public ones... Let's say that they don't care about your comfort or well-being in the slightest. I am still very much a weakling, a manchild scared of any pain, and a crybaby. I admit it, and I'm fine with that. I have no slightest desire to become what society expects from a man. Right now I am able to afford virtually any dentist, but that's too late.

Fillings.
I think I had a filling applied twice in my life, when I was around 9 years old. One of them fell out soon, but the other one last to today (and that tooth is still in a good shape). I remember placing a filling to require three visits, with the first one being absolutely the worst: The dentist placed what I remember was "nerve poison" in my tooth, and within minutes, it started to hurt. A lot. In home, I was crying and screaming from pain for hours, and painkiller pills (if I was given any) did little to help. The public dentist definitely did absolutely nothing to prevent that - I was just expected to tough it out. Remember, I was a child back then, around 9 years old. Weak, defenseless, scared, and already gravely afraid of dentists and pain. On second visit, the poison was removed, and "medicine" (I guess some disinfectant) some placed instead. On third visit, it was replaced with an actual filling. These visits were not nearly as bad, at the cost of the first one.

Deciduous teeth extraction.
Some of my baby teeth had to be extracted, because they were either getting rotten, or refused to fall out on their own. Of course that was not pleasant, but since they were meant to fall out eventually, they were not rooted too hard, and removing them usually was not difficult. Sometimes we were able to afford a private dentist, and he had a wonderful machine, that could spray something and freeze a tooth. I remember this being very quick, almost painless, but costing quite a lot of money (again, we were poor). Last time I visited a dentist (to remove canine milk teeth, which refused to fall out themselves) was over 20 years ago. It was a public one, and I believe he messed up a bit. I think he meant to inject the anesthetic into the gum around the teeth, but he "overshoot" a bit, and hit my actual teeth with the sharp top of the needle. It was painful, but not the worst thing ever. Nothing compared to what comes next.

Removal of permanent teeth.
I was around 10 y.o. when my parents took me to a public dentist, to extract a rotten, permanent molar. This is, beyond any doubt, the most painful memory of my life - even breaking my bone in an elbow was not nearly as bad (!). The dentist was either incompetent, sadistic, or both. I was injected with an anesthetic and told to wait in the hallway for it to take effect. But it never really did in full. Also, the procedure went really badly. She was not able to extract that tooth in one piece, but instead, it broke into like 4 pieces, which she had to drill out individually. That all took well over an hour, and of course, the anesthetic (not very effective to begin with) has severely worn out by then. But she did not care. I was not administered more.
When I wanted her to stop she just told me, that if it's not extracted that way right now, it will have to be removed surgically. Images of scalpel cutting through my gums flooded my mind. Great, what a way to treat a child. Scare them into compliance. I was yelling and crying from pain, but it just continued. My parents were in the room, but did not stop her. They loved me, but the mentality of this country at the time was that it simply has to hurt a lot, and that You're supposed to tough it out, like everyone else. That scarred me mentally for life, and is the main reason, why I will never visit a dentist ever again.
My suspicion is that she used either procaine (Novocaine) - which AFAIK has a half-life of 7.5 minutes - or something even weaker.

Both fillings and this extraction were the most painful experiences in my life - I would literally prefer to let someone break my arm again, rather than get any dental procedure from any dentist.

My suspected resistance to anesthesia / analgesics.
I am not really afraid of thin needles, like ones used to inject anesthetic. Heck, if the purpose is to reduce pain, then stab me all you want, I can take that no problem. But despite me being a weakling with really low pain threshold, I suspect, that I may have some resistance to anesthetics. They never worked that well for me. The area did feel numb, but the pain was still very much present. Around 2 years ago I had a non-emergency surgery to fix a hernia, and I was injected with an anesthetic into the spine (subarachnoid space). My colleague went through the same exact procedure before me, and told me that he could feel no pain during the surgery at all - only some touch or pressure. It was not the case for me - I could definitely still feel some pain, that was sometimes difficult to bear, like if I was continuously stabbed with syringe needles. Of course the personnel, hearing my sounds ("ouch"es) of being in pain (which I couldn't hold in) was convinced that I'm imaging things, and reprimanded me for bothering them. Yeah... I was also supposed to be given some relaxant / sedative before the procedure, but even if I received one, it had no effect whatsoever - I was 100% conscious the entire time, and if given a laptop, I could easily code at that time.

Life without a dentist.
This is the drastic part, You have been warned.
Last time I visited a dentist was over 20 years ago, as described earlier. Some of my teeth, especially molars, decayed to the point that only roots are left. It was painful, most often unbearably, but it was nothing, nothing compared to pain of visiting a dentist. Toughing it out was much preferable to even the thought of having a dental procedure. And still is, although I don't suffer as much nowadays - some teeth have decayed to the point they simply cannot hurt anymore, others are kept in a relatively good shape and do not hurt.
Now I know, what You're thinking - what happens, if one day the pain becomes so bad, that I cannot take it anymore? Surely, I will have no choice but to go.
No, there is another way out for me. I am completely serious and not exaggerating, that if that were to happen, I will take my own life. To me, that option is preferable to a dental procedure, without any doubt. I have no family (in part for that very reason), so no one would miss me too much, or rely on me.
Please do not tell me to get help etc. - I will not, and my mind cannot be changed on that. I am also an antinatalist, and I didn't ask for this darn life that I hate above everything - and especially for these darn teeth. I would be the happiest, if all my teeth fell off naturally. Even if that would hinder my ability to speak or to eat solid foods, it would be a tradeoff I would be willing to make.
I am sometimes thinking, how much of my hatred towards life I can attribute to these experiences.

Inability to brush.
It should come as no surprise, that my gums were in a pretty bad shape. I was told once by a dentist to buy a soft toothbrush. That's fine, except... it was literally impossible to buy one, even in a pharmacy. All they had were hard and medium ones - and they would be too rough for my gums. So, given no options, I just didn't brush my teeth for many years, since last visit. I used alternate methods - rinsing with water and mouthwash, using toothpicks, and sugar-free chewing gum (which I absolutely need to have with me at any point in time). It was just in 2014, when I tried to look for them online. And I finally found one: Swiss ultra-soft ones (Curaprox CS 5460). Immediately fell in love with them, and I'm using them ever since. They're quite expensive, but worth every penny, and more. They also definitely reduced amount of toothache I went through since. Using a toothpaste with Aluminum Lactate also helped my gums a lot.
 
This is deep. Its almost too deep for me to even contemplate the pain and suffering you have felt in your life.

As a last resort option, is it possible to visit a country like Belgium/Turkey/Hungary, where they are known for good dental care, that might help to fix your teeth if things get so bad it is unbearable?

Id do anything to help if i could, i just feel helpless that I cant :( im so sorry
 
@MagicDuck12
Thank You for the response and empathy.

While my specific geography might have been a cause for my phobia, it is not, by any extent, limited to it now. I have no doubt that the state of dentistry (especially private) even here has improved, but no amount of testimonials of painless procedures from friends and extended family will make me trust or believe any dentist ever again. I am the only person I trust with my teeth.
Today I could probably afford to visit the best dentists in EU, but it's not something I could ever do, because of my fear, regardless of who it is, and what their track record is.
The only thing keeping me calm is knowing, that I have that other way out. Planned out already, if needed.
(Also, I fully understand Belgium, but Hungary - also a post-communist country, and Turkey - with their current situation? I find that surprising.)
 
Wow, didn't want to read and run. With everything you've been through it's no surprise at all that you feel the way you do; I can't even imagine how painful and frightening it must have been, I'm so sorry. You say how anaesthetic doesn't last long/work correctly ... are you a natural redhead or do you have Ehler's Danlos Syndromes at all? I know anaesthetic can be problematic for those people and likely there are other things too that can affect it. I think to feel as you do, there is more going on than the teeth maybe but even if it's related only to the teeth, things have moved on a lot in dentistry and, much as I know you don't want to hear it, some on here who felt the same way ended up being able to go and were surprised at how much easier it is now. I think there are temporary fillings pharmacies and maybe Amazon have that can be done at home (if ever needed) but I'm not sure how long they last. Could you even consider either CBT therapy or EMDR (if available for you) or seeing if you could find a Dentist that says they're good with nervous patients and just having a chat, no more, no check up, just a talk. Maybe they could reassure you they'd thoroughly test if numb first and would stop immediately if asked?

I realise that might be way too much though, so it's just an idea to think on. There's dentures, but that means a Dentist and I don't think they will take out healthy teeth as I've been begging for my two front ones to be removed forever. Sorry things are so tough, it can't be easy x
 
Hi @Cant_again , you were asking for practical tips on being your own dentist, so to speak. Great to hear that you found the page on stopping tooth decay helpful! There is also a second page which is probably just as important - it's the one on preventing gum disease from getting worse. While it's easier to start on this one after a professional cleaning (which I realise is a no-go in your case), you can also follow the tips on this page without any professional help:


I don't think an extra soft toothbrush is regarded as the preferred option these days (unless perhaps you have dental OCD and use an excessive amount of pressure to brush your teeth, and brush for hours each day). From what I've read, most people achieve the best results using an Oral-B type oscillating rotating toothbrush (the rechargeable types) with something like a cross-action brush head. But if that feels like too much, there is a gentle clean toothbrush head as well. So an electric toothbrush is something to think about, as well as finding a way of cleaning in between teeth once a day (see the above link for more info).

It sounds as if you're still quite young, so taking these steps now may help you get through life without having to resort to extreme measures. Having said that, having professional cleanings from time to time does make things a lot easier to keep clean - but given your bad experiences, it's no surprise you're reluctant to consider this option.


P.S. I know you're not considering seeing a dentist, but just in case you should ever change your mind in a crisis, Lincoln Hirst who did the DIY dentistry video on our website might be a good fit if you're happy to travel long distances and have money to spend. There's an interview with him here:


Mind you, there's probably plenty of good people out there who could help (though I'd strongly advise against going to Turkey or Hungary, judging from the horror stories you see online).
 
@letsconnect Probably on reflection yes, my suggestion was a bad one. Was just thinking, affordability and logistics
 
@Tigerlily Thanks for the inputs and pointers.
I am not a redhead, and I was never diagnosed for EDS. I don't think I have it, but I definitely cannot exclude that yet - some of its signs match me to some extent, but it would require a proper, medical diagnosis.
Regarding a therapy - sadly, this is a no-go for me as well. Psychologists and psychiatrist could feel the scent of my intentions, and institutionalize me "for my own good", or to "protect me from myself", possibly even getting me through forced treatments - which could as well include dental ones.
And being deprived of physical freedom, and the escape route, is actually one of my biggest fears as well.
Ironically - the fact they can do that means, that people who need them, will avoid them, often at all costs.
I'm at the point where I could not trust anyone - friends or family - to go with me, to even have a talk with a dentist, as I constantly imagine they could (again, for my own good) force me down to the dental chair, instead of protecting me physically if needed. Probably I would need to hire a professional bodyguard for that.

Looking through materials available on website made me realize one thing: It would be really useful, if I could measure and monitor the acidity (pH) in my mouth - after eating etc. Either using test strips or a device.
As a technical person, I love making measurements of any kind, and I have some understanding of most science fields - including chemistry. Not my career, but I was always good at it.
For quire a few years I am actually obsessed with keeping my mouth clean. One could say I am adjusting my entire lifestyle towards it. I make sure, that any remnants of food are being removed from my teeth constantly, drinking large amounts of water, often during the meals or with other drinks, using sugar-free gum etc. Knowing the effectiveness of it (impact on pH) could also help me.

@letsconnect , I appreciate the understanding.
These ultra-soft were critical for me in the time, when my gums accepted nothing else. Now, I am trying other kinds as well, including electric one, with various softness of heads.
I still use these ultra-soft ones during the day, after meals (keeping the Stephan Curve in mind), to remove any food remnants before they can do any harm, as some of my teeth have their defenses weakened. I am aware, of how quickly the pH drops, and I'm doing all in my power to prevent that in the first place. Water is my best friend so far.

I had never gone through dental cleaning, so I have no experience with it - good or bad. At the same time I think this was always something unusual, reserved for rich people, during my childhood. Definitely not a part of standard oral healthcare.
However, since it's physically invasive (in my state it would have to be, in order to be effective) it bears the same fear as other procedures - especially, the dentist not respecting my wishes or well-being.

There's one more sad part. In my mind, this dentophobia is not bad. It is actually desired, as it protects me from even considering the dental visit again - the worst mistake possible to my mind. Pushing me to find ways to "become my own dentist", and away from becoming a normal human being.
 
There is one more thing I am wondering about. Technical one, safe to read this time.

My molars are seriously receded to the back of my jaw. Basically, the layout of my teeth is greatly elongated, and narrowed. I tried to chart the line showing the centers of my teeth (or what remains of them) superimposed on numbering diagram from this website.
Yes, they are crooked that much. My maxilla is also shifted approx 10-15mm to the right, relative to mandible.
At the bottom, all my pre-molars and molars, on each side, are basically in a straight line. At the top, lines of these teeth curve outwards(!) as they go to the back (from 4 to 8). They also stick outwards, towards the cheeks, instead of straight down.

I can easily brush them, but reaching them with a floss is near impossible. My mouth (as in orifice, lips) is also rather narrow, as I do not smile, ever, even with my mouth closed - giving me less entry space.
Am I supposed to floss between these molars in the back too? If so, are there some techniques or tools that could help reach there?
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